Welcome to the website for the study: Optimising Management of Heart Failure with Preserved Ejection Fraction in Primary Care (Optimise HFpEF). This was a collaborative programme of work funded by the NIHR School for Primary Care Research (https://www.spcr.nihr.ac.uk/) to improve the management of people with HFpEF. The study involved investigators from four universities:
- Primary Care Unit, Department of Public Health and Primary Care, University of Cambridge School of Clinical Medicine (Lead)
- Nuffield Department of Primary Care Health Sciences, University of Oxford
- Research Institute, Primary Care and Health Sciences, Keele University
- Centre for Primary Care, Institute of Population Health, University of Manchester
Our primary aim was to develop a programme of optimised management by improving our understanding of the needs and the experiences of patients with HFpEF, clinical decision-making and management in primary care, and integrating research findings with patient and clinical expertise.
We have now published an evidence synthesis with information and findings from the Optimise HFpEF study. You can access it here Research Briefing: diagnosis and management problems for patients with hidden heart failure – Primary Care Unit (cam.ac.uk) or you can download this document
Healthcare Providers in Primary and Secondary Care: You can help us improve diagnosis and management of HFpEF by giving us your perspectives in our brief online survey please. Taking part involves following this link: https://cambridge.eu.qualtrics.com/jfe/form/SV_2bIaWonNAbRFlyJ to a digital survey. Before taking the survey you will be asked to confirm you are consenting to take part in this research. After completing the consent process you will be invited to respond to a series of statements and questions. The survey should take approximately 10 minutes to complete.
For more information about Optimise-HFpEF, please see the scientific summary and our protocol paper, which is available in BJGP Open: https://bjgpopen.org/content/3/4/bjgpopen19X101675.long
Notice regarding the COVID-19 Pandemic for Optimise HFpEF participants
This has been and continues to be a challenging time for all of us. We hope that our patients, their families and friends have stayed safe and well during this period.
The Optimise HFpEF study has suspended face-to-face study visits and meetings to protect patients and the NHS, but we are planning to resume some of our work by mail and online. Some of our patients still need to complete a 12 month follow-up, and we plan to do this remotely with mailed questionnaires and activity monitors in the first instance. If it becomes possible and safe to do so, we may conduct home visits for follow-up for some patients. We very much appreciate our study participants who have given generously of their time. We encourage all of our patients to stay as active as possible, eat well and call on community resources and the NHS as needed. Health care is available for you if you become ill for any reason, so don’t hesitate to seek help if needed. If you regularly walk or cycle, please continue as long as you maintain social distance (about 2 metres) from other people. The restrictions imposed nationally over the last few weeks are slowly being eased, and we look forward to seeing our participants again in the future.
For the latest information, please check: https://www.gov.uk/coronavirus
The British Heart Foundation provides information for people with heart conditions: https://www.bhf.org.uk/informationsupport/heart-matters-magazine/news/coronavirus-and-your-health
The Pumping Marvellous website has some really useful information for people with HF during the COVID-19 outbreak: https://pumpingmarvellous.org/heart-failure-advice-leaflet-for-patients-during-covid-19/ Patients can also join the Facebook group of Pumping Marvellous, the HF patient charity. This will allow you to connect with others with HF: https://www.facebook.com/groups/helpforhearts/
The European Society of Cardiology website also provides information specifically for patients with heart failure about COVID-19: https://www.heartfailurematters.org/en_GB/
More information in general for people with heart conditions can be found here: https://www.escardio.org/Education/COVID-19-and-Cardiology/what-heart-patients-should-know-about-the-coronavirus-covid-19